Maine
Disorders Screened in Maine
Maine does NOT provide the
full panel of screenings
recommended by Save Babies Through Screening Foundation. Parents should seek
supplemental
screening for the disorders and conditions not included in the state's panel.
The disorders that are screened, or likely to be detected, by your state's
program are identified by the
National Newborn Screening and Genetics Resource Center in simplified format or in
PDF format.
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General Information
The Maine Newborn Screening Advisory Committee (NBSAC)
recommended in January, 2001, that the state mandate screening for Sickle Cell Disease and Hemoglobinopathies. They also
recommended that the state perform pilot study or an expanded MS/MS panel, with parental option to refuse, effective July 2001.
Information provided in March, 2005, states that 99.8% of all families have accepted this testing.
Laboratory testing for Maine is performed by the New England Newborn
Screening Program, operated through the University of Massachusetts Medical School. All newborn specimens drawn at birth hospitals
in Maine are sent by next day courier directly from the nurseries to the New England Newborn Screening Program.
Newborn Screening Advisory Committee
Maine has a Newborn Screening Advisory Committee (NBSAC).
Maine NBSAC ChairpersonMore Information and Support Resources
Unknown at this time
NBSAC Meeting Dates
Unknown at this time
Location of Meetings
Location varies
- Maine Newborn Screening Program: 207-287-5357.
- New England Newborn Screening Website
- New England Regional Genetics Group (NERGG)
- Maine Family Village Community Center
-
Maine Parent Federation
Please write to us if you have any updates, changes, or new information to be added to this page.
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