Kentucky

Disorders Screened in Kentucky
Kentucky does NOT provide the full panel of screenings recommended by Save Babies Through Screening Foundation. Parents should seek supplemental Screening for the disorders and conditions not included in the state's panel.

The disorders that are screened, or likely to be detected, by your state's program are identified by the National Newborn Screening and Genetics Resource Center in simplified format or in PDF format.

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General Information
Kentucky completed the process of expanding its newborn screening panel to 29 disorders (plus hearing screening) by the anticipated date of January 1, 2006. The 2005 General Assembly had passed legislation (1) to expand to the full core panel of 28 disorders, per recommendations by the American College of Medical Genetics (ACMG), plus SCAD Deficiency [from the secondary targets]--all recommended by ACMG/HRSA ; and (2) to establish ongoing funding for the newborn screening program. Implementation occurred over a six-month rollout from July 1 through December 31, 2005.

BACKGROUND: As of August, 2004, funding had not been provided to implement the provisions of a 2001 law which would have expanded newborn screening to a total of 11 disorders. This expansion would have extended the technological capabilities for screening an additional 25 disorders pending further funding.

Originally, there were two legislative developments affecting the newborn screening program. A pre-bill was filed that would mandate screening for Cystic Fibrosis (CF) and other diseases which would include some of the diseases detected through the use of tandem mass spectrometry (MS/MS). Legislation was submitted to require medical insurance policies to cover up to $4,000 per patient per year of special formula.

Kentucky has approximately 54,000 births each year.

Newborn Screening Advisory Committee
Kentucky has a newborn screening task force that meets for the purpose of making recommendations to the state newborn screening program. The primary function of the task force has been to seek funding and to develop business plans for expansion of newborn screening.

Kentucky NBS Task Force Chairperson
Unknown at this time

NBS Task Force Meeting Dates
Unknown at this time

Location of Meetings
Unknown at this time

• Kentucky Family Village Community Center
• Kentucky Newborn Screening Program Website
• James William Lazzaro and Madison Leigh Heflin Newborn Screening Act
• Jason Heflin, Kentucky NBS Advocate Note: This is a PDF file of 3.02 MB and may require a long download time.

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