Cost Analysis Research for Costs and Outcomes for MCAD
A study is being conducted at the Children’s Hospital of Philadelphia to determine the costs and outcomes for metabolic disorders with initial focus on Medium-Chain Acyl CoA Dehydrogenase (MCAD) deficiency.  Your participation in this cost survey (no matter which metabolic disorder your family is affected by) would be extremely helpful in establishing whether more contemporary methods and policies for newborn screening for metabolic disorders are cost-effective.  This survey involves answering questions about medical costs incurred because of your or your child’s metabolic disorder both pre- and post-diagnosis.  Even if you or your child did not incur any medical expenses, it is important to record that information.  We want to collect data on the costs incurred in the most recent full year.  If more than one child has been affected in your family, we would appreciate your filling out one survey per child per year.  All data collected is confidential. 

Click here to download the survey form now.

More Information
For more information, please contact:

Dr. Charles Venditti
University of Pennsylvania
CRB Rm 505
415 Curie Blvd
Philadelphia PA 19104
Fax:  (215) 590-3298
Email: venditti@ix.netcom.com 

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