Research Information
Research Studies
Affected individuals and their families are constantly needed to participate in research studies.
Please consider participating.
 |
MCAD Cost-effectiveness study for screening by Children's Hospital of Philadelphia |
|
Propionic Acidemia Outcome Study by University of California |
Research
Funds
The following research funds have
been set up to accelerate research for a cure of disorders detectable through
newborn screening.
|
Propionic Acidemia
Foundation (PAF) University of Texas Southern Medical Center 5323 Harry Hines Blvd. Dallas, TX 75390-9009 Contact Person: Robert L. Hull (214) 648-3445 www.pafoundation.com |
|
Scott C. Foster
Metabolic Research Fund 16 Angelina Lane Mansfield, MA 02048 Contact Person: Trish Mullaley (508) 261-1291 For Phenylketonuria (PKU), Maple Syrup Urine Disease (MSUD), Homocystinura (HCU), Tyrosinemia, organic acidemias (OA) and urea cycle disease (UCD). |
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