Through the generosity of Perkin Elmer Genetics, Inc., and funding provided by the Save Babies Through Screening Foundation, a limited number of newborn screening packets for additional screening are available each month, free of charge, for pregnant families who qualify.
It is important to check which disorders are currently screened for in your state to see if additional screening is needed.
You should apply early in the third trimester (7th month of your pregnancy), or sooner, so there will be time to arrange with your care provider and hospital for a few extra drops of blood to be drawn from your baby's heel at the same time the routine newborn screening is done. It is important to plan in advance! Hospitals are not necessarily familiar with additional newborn screening.
Please send an email to Packets@savebabies.org and include the following information
1. Your full name
2. Postal address
3. Baby's due date
4. Family history of metabolic disorder (if any)
5. Name of city and state where your baby will be born
6. A simple statement that you are not able to pay for the newborn screening packet
You can also call us toll free at 1-888-454-3383. Mention "free newborn screening packet" and someone will call you for the information noted above.
Learn more about newborn screening, which disorders are screened for in your state, and other frequently asked questions. More
Learn what it means when your baby initially screens positive for a disorder. What questions should you ask your doctor? What resources are available? More
Find support groups for and learn more about your baby’s disorder, learn about additional resources available to you and your family. More
Access Save Babies Through Screening Foundation's extensive links to resources available to support you, learn about screenable disorders. More
Watch to learn why newborn screening is vital for your family and the country. Hear compelling stories of families who have been impacted by newborn screening. More