© 2008 Save Babies Through Screening Foundation. All rights reserved.
The Save Babies Through Screening Foundation is a not-for-profit organization recognized as tax-exempt under Internal Revenue Code section 501(c)(3).
Our mission is to improve the lives of children by working to prevent death and disabilities resulting from disorders detectable through newborn screening tests.
The Save Babies Through Screening Foundation is a not-for-profit organization recognized as tax-exempt under Internal Revenue Code section 501(c)(3).
Our mission is to improve the lives of children by working to prevent death and disabilities resulting from disorders detectable through newborn screening tests.
Save Babies Through Screening Foundation, Inc.
P. O. Box 42197 • Cincinnati, Oh 45242
Toll Free: 1-888-454-3383
P. O. Box 42197 • Cincinnati, Oh 45242
Toll Free: 1-888-454-3383
Bereavement Resources
General Support Resources
Family-Based Disease Support Groups
Other Site of Interest Related to Newborn Screening and the
Disorders Detactable Through It
Disorders Detactable Through It
National Newborn Screening and Genetics Resource Center (NNSGRC)
Newborn Screening Organizations and Services
American Sickle Cell Association
Bailey Baio Angel Foundation
Biotinidase Deficiency Family Support Group
CARES Foundation(Congenital Adrenal Hyperplasia)
Children's PKU Network
Cochrane Cystic Fibrosis & Genetic Disorders Group
Cystic Fibrosis Foundation
Family Friendly Health & Recreation Topics (for families with special needs)
Fatty Oxidation Disorder Family Support Group
International Organization for Glutaric Acidemia
IVA Family Support Group
MSUD Family Support Group
National PKU Organization
National Urea Cycle Disorders Foundation
NKH International Family Network (Nonketotic Hyperglycinemia)
Organic Acidemia Association
Parents of Galactosemic Children
SIDS Network
SIDS Resources Organization
United Mitochondrial Disease Foundation
NOTE: If a support group doesn't currently exist for your disorder, you may want to consider starting one. You should check with the organizations like the Genetic Alliance or American Self Help Group Clearing House to find out if they have a group listed for your disorder that you could join, and, if not, they can help guide you in how to start one.
Bailey Baio Angel Foundation
Biotinidase Deficiency Family Support Group
CARES Foundation(Congenital Adrenal Hyperplasia)
Children's PKU Network
Cochrane Cystic Fibrosis & Genetic Disorders Group
Cystic Fibrosis Foundation
Family Friendly Health & Recreation Topics (for families with special needs)
Fatty Oxidation Disorder Family Support Group
International Organization for Glutaric Acidemia
IVA Family Support Group
MSUD Family Support Group
National PKU Organization
National Urea Cycle Disorders Foundation
NKH International Family Network (Nonketotic Hyperglycinemia)
Organic Acidemia Association
Parents of Galactosemic Children
SIDS Network
SIDS Resources Organization
United Mitochondrial Disease Foundation
NOTE: If a support group doesn't currently exist for your disorder, you may want to consider starting one. You should check with the organizations like the Genetic Alliance or American Self Help Group Clearing House to find out if they have a group listed for your disorder that you could join, and, if not, they can help guide you in how to start one.
Use of this site implies that the user acknowledges and agree to the Terms of Use.
Exceptional Parent Magazine
Mercy Medical Airlift
MUMS - National Parent-to-Parent Network
Needy Meds
The Medicine Program
Free Medicine Program
Mercy Medical Airlift
MUMS - National Parent-to-Parent Network
Needy Meds
The Medicine Program
Free Medicine Program
Sherokee Ilse's Coalition for Positive Outcomes in Pregnancy Website
Bereaved Parents
EternaLight Memorial
Bereaved Parents
EternaLight Memorial
NeoGen Labs - Providing newborn screening (NBS) for babies born in India
Institute of Research in Mental and Neurological Handicap - Located in India - Services and information related to genetic disorders
International Society for Neonatal Screening
Metabolic Screening Laboratory -Research Centre of King Faisal Specialist Hosptial in Riyadh, Saudi Arabia
2M Associates - Healthcare Division for Newborn Screening - Providing NBS services throughout India and the United Arab Emirates (UAE)
Institute of Research in Mental and Neurological Handicap - Located in India - Services and information related to genetic disorders
International Society for Neonatal Screening
Metabolic Screening Laboratory -Research Centre of King Faisal Specialist Hosptial in Riyadh, Saudi Arabia
2M Associates - Healthcare Division for Newborn Screening - Providing NBS services throughout India and the United Arab Emirates (UAE)
Regional Newborn Screening Collaborative Groups (NCCRCG)
Government Agencies
Consumer Health Organizations
Related Resources
Medical/Professional Organizations
NNSGRC: GeNeS-R-US (Genetic and Newborn Screening Resource Center of the United States)
American Academy of Pediatrics
American Association for the Advancement of Science
American College of Medical Genetics
American College of Obstetricians and Gynecologists
American Hospital Association
American Medical Association
American Public Health Association
Association of Public Health Laboratories
Association of State and Territorial Health Officials
Genetics Societies
American Association for the Advancement of Science
American College of Medical Genetics
American College of Obstetricians and Gynecologists
American Hospital Association
American Medical Association
American Public Health Association
Association of Public Health Laboratories
Association of State and Territorial Health Officials
Genetics Societies
American Liver Foundation
Arc of the United States
Healthy Mothers Healthy Babies Coalition
Genetic Alliance
March of Dimes
National Organization for Rare Disorders (NORD), Inc
Arc of the United States
Healthy Mothers Healthy Babies Coalition
Genetic Alliance
March of Dimes
National Organization for Rare Disorders (NORD), Inc
Centers for Disease Control
Maternal and Child Health Bureau
National Health Information Center
National Institutes of Health
Maternal and Child Health Bureau
National Health Information Center
National Institutes of Health
AboutNewbornScreening.com
Cerebral Palsy - Ask the Doctor
Cerebral Palsy Directory
Connecticut Newborn Screening - FREE program for Continuing Education Credits for health care professionals in Connecticut
Everybody Has Something - book for young readers written by the parent of a child with PKU
NewbornScreening.com
PerkinElmer Life and Analytical Sciences - Reagents, instrumentation and LIMS software supplier for screening programs
PHG Foundation - Cambridge, UK (Formerly: Public Health Genetics)
SimulConsult, Inc - Medical diagnostic software for medical professionals
The Differential Diagnosis of Child Abuse - Certain metabolic disorders can mimic child abuse
Cerebral Palsy - Ask the Doctor
Cerebral Palsy Directory
Connecticut Newborn Screening - FREE program for Continuing Education Credits for health care professionals in Connecticut
Everybody Has Something - book for young readers written by the parent of a child with PKU
NewbornScreening.com
PerkinElmer Life and Analytical Sciences - Reagents, instrumentation and LIMS software supplier for screening programs
PHG Foundation - Cambridge, UK (Formerly: Public Health Genetics)
SimulConsult, Inc - Medical diagnostic software for medical professionals
The Differential Diagnosis of Child Abuse - Certain metabolic disorders can mimic child abuse
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