Cost Analysis Information
Cost
Benefit Survey Results for Fatty-acid Oxidation Disorders
The FOD Family Support
Group conducted a survey in 1999 of their members that compared the cost
benefit of early diagnosis.
Cost
Survey Results for Organic Acid Disorders
The Organic
Acidemia Association conducted a survey of their members that compared the
cost benefit of early diagnosis.
Justification
for Routine Newborn Screening for Fatty Acid Oxidation and Organic Acidurias In
Wisconsin
In 1996, the Wisconsin
Newborn Screening Program performed an extensive review to establish whether
14 fatty-acid oxidation and organic acid disorders met Wisconsin's established
criteria for screening purposes. The outcome of the report was that
approximately $500,000 would be saved annually once the screening became
routine. Screening for these 14 additional disorders started April 3rd,
2000.
March
of of Dimes' Newborn Screening: An Overview of Costs and Finances, 2002
This 39-page report was published in January 2002.
Cost
Effectiveness Research Study of Newborn Screening for MCAD
A
study is being conducted at the Children's Hospital of Philadelphia to
determine the costs and outcomes for metabolic disorders with initial focus on
Medium-Chain Acyl CoA Dehydrogenase (MCAD) deficiency.
Your participation in this cost survey (no matter which metabolic
disorder your family is affected by) would be extremely helpful in
establishing whether more contemporary methods and policies for newborn
screening for metabolic disorders are cost-effective.
This survey involves answering questions about medical costs incurred
because of your or your child's metabolic disorder both pre- and
post-diagnosis. Even if you or your
child did not incur any medical expenses, it is important to record that
information. We want to collect
data on the costs incurred in the most recent full year.
If more than one child has been affected in your family, we would
appreciate your filling out one survey per child per year.
All data collected is confidential.
Other Information
Cost
Analysis Information
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