Cost Analysis Information
Cost Benefit Survey Results for Fatty-acid Oxidation Disorders
The FOD Family Support Group conducted a survey in 1999 of their members that compared the cost benefit of early diagnosis.
Cost Survey Results for Organic Acid Disorders
The Organic Acidemia Association conducted a survey of their members that compared the cost benefit of early diagnosis.
Justification for Routine Newborn Screening for Fatty Acid Oxidation and Organic Acidurias In Wisconsin
In 1996, the Wisconsin Newborn Screening Program performed an extensive review to establish whether 14 fatty-acid oxidation and organic acid disorders met Wisconsin's established criteria for screening purposes. The outcome of the report was that approximately $500,000 would be saved annually once the screening became routine. Screening for these 14 additional disorders started April 3rd, 2000.
March of of Dimes' Newborn Screening: An Overview of Costs and Finances
This 39-page report was published in January 2002.
Cost Effectiveness Research Study of Newborn Screening for MCAD
A study is being conducted at the Children's Hospital of Philadelphia to determine the costs and outcomes for metabolic disorders with initial focus on Medium-Chain Acyl CoA Dehydrogenase (MCAD) deficiency. Your participation in this cost survey (no matter which metabolic disorder your family is affected by) would be extremely helpful in establishing whether more contemporary methods and policies for newborn screening for metabolic disorders are cost-effective. This survey involves answering questions about medical costs incurred because of your or your child's metabolic disorder both pre- and post-diagnosis. Even if you or your child did not incur any medical expenses, it is important to record that information. We want to collect data on the costs incurred in the most recent full year. If more than one child has been affected in your family, we would appreciate your filling out one survey per child per year. All data collected is confidential.
Save Babies Through Screening Foundation, Inc.
P. O. Box 5037 • Douglasville, GA 30154
Toll Free: 1-888-454-3383 • Fax: (770) 726-4635