Resource Library
You will need Acrobat
Reader to view most of the following documents.
CME Self Study
From time to time we post self study CME on this website. Please contact us with any newborn screening self study CME you may be aware of.
Order Forms
A Parent's Guide to Newborn Screening
A Parent's Guide to Newborn Screening, SBTS brochures and posters can all be ordered online, by mail, fax, or by calling the toll free number.
What
Can I Do? KIT - Order Form
Save Babies Through Screening has put together many materials to help
interested persons advocate for newborn screening. You can obtain this
advocacy packet by filling out the advocacy
packet order form. There is no charge for the Advocacy Pack.
Educational
Materials
Video
A 10-minute educational videotape about newborn screening options available.
Suitable for childbirth education classes and similar environments. Free
plus $1.50 per video shipping and handling. Please specify quantity and
English or Spanish.
If you have a high speed internet connection,
the video may also be downloaded in mpg format by right-clicking either English or Spanish and picking "save link as" (WARNING: Very large files (220MB) Estimated download time is 30 minutes via DSL/Cable/T1).
A
Parent's Guide To Newborn Screening
(English)
Click here for the Spanish Version
An informative handout on newborn screening written for expectant families.
Corporate Sponsorship
Program: Learn
about it here
or download the pamphlet to
share with your boss.
NBS Unity Quilt - A
Celebration of Rarity
Save Babies Through Screening will be collecting quilt panels from families
with children who have disorders detectable through newborn screening for a NBS
Unity Quilt. This form must be submitted with each quilt panel.
Newborn Screening:
What Is It and What Does It Mean To My Baby?
Answers to the most frequently asked questions by parents about newborn
screening.
Save
Babies Through Screening - Raising the Awareness of Newborn Screening and Related
Disorders
Save Babies Through Screening is a non-profit volunteer
organization whose mission is to improve the life of babies by preventing mental
retardation and death resulting from disorders detectable through newborn
screening. This handout tells more about SBTS.
State Lines:
What do They Mean To Your Baby's Health?
A handout designed to educate
expectant and new parents on the discrepancies in the disorders screened for from state
to state.
State Screening Table:
What Your State Screens for...
Each state requires screening for different
disorders. This table outlines what each state currently screens for and
any disorders being considered added to the screening panel. More information
about each states NBS program is available on the state
screening pages.
United Way "Donors Choice" Option
You can initiate a write-in campaign in your workplace. Most co-workers are
eager to donate to a cause that is personally tied to a colleague. Please
advise fellow employees how to benefit SBTS through their United Way
contributions by writing in Save Babies Through Screening. Learn more about the Donor's Choice Program.
Family Publications
Anna's Story - Supplemental Newborn Screening
Written by Melanie and Dell Ruff, parents of Melanie Ruff (MCADD).
Getting Answers - A Parent's Guide
For Obtaining Newborn Metabolic Screening After Your Child's Death
Written by Kileen Hall, mother of Storm and Tiger Hall (VLCADD).
Other Information
Cost
Analysis Information
Medical
Journal Publications
News Items - for older items email Teri
SBTS Newsletters
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