For newborn screening in Canada visit Save Babies Through Screening Foundation of Canada
Save Babies Through Screening Foundation is a national nonprofit public charity run by volunteers. Its mission is to improve the lives of babies by working to prevent disabilities and early death resulting from disorders detectable through newborn screening. Without proper screening affected children will likely suffer mental retardation, physical disability or even death. Most affected children can lead normal, healthy lives when diagnosed and started on treatment early.
Save Babies Through Screening Foundation supports, assists and advocates screening for disorders that are detectable through filter paper newborn screening; are unlikely to be clinically diagnosed without screening; and cause mental retardation, physical disability and/or death in early childhood when left untreated.
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Test Packets for Supplemental Newborn Screening
Click on TEST PACKETS for laboratory information.
FREE TEST PACKETS for Parents who Qualify
For information about this program and to learn if you qualify, please click on Packets for Parents. Quantities are limited, and certain restrictions apply!
Advisory Regarding Test Packets
If your hospital has refused to draw blood for the supplemental newborn screening that you purchased from a private laboratory, Save Babies Through Screening Foundation would like to know. Please send the details (hospital name and address, names of medical staff who refused, date of your baby's birth, description of the refusal incident, the reason given for refusal, etc.) to us. You may email the foundation or write to Save Babies Through Screening Foundation, 4 Manor View Circle, Malvern, PA 19355. If your privacy is a concern, we will honor your request to keep your personal information confidential.
Help Support the Save Babies Through Screening Foundation
Your contributions benefit babies! Donate online securely now by clicking the icon, or go to How to Donate for other contribution options.
Your participation in one of our fundraisers benefits babies! Proceeds from your purchase of logowear, household items, awareness wristbands and bracelets-for-moms directly support our newborn screening mission. Please take a look at our merchandise!
Help Save Babies
Participate in the TELL THE SHOPPERS program.
Call To Action
Please write to the Oprah show requesting that Oprah include newborn screening as a topic for one of her programs.
Screaming For Newborn Screening
- A Parent's Guide to Newborn Screening Pamphlet Available Now
- A Parent's Guide to Newborn Screening, Spanish Pamphlet Available Now
- Order newborn screening educational materials
Newborn Screening in the News
- Recent Press News & Media Archives (Click on "nbsannouncements" if headlines do not automatically appear.)
- 01/08/2008 - The Unusual Suspects: Genetic Metabolic Disorders in the Newborn
- 12/11/2007 - Lessons from Toddler's Death Due to MCAD Deficiency
- 11/08/2007 - Cystic Fibrosis Foundation Lays Out New Treatment Guidelines
- 10/15/2007 - Sickle Cell Patients Seek Answers
- 09/19/2007 - Consumer Task Force on NBS Established
- 08/06/2007 - Knowing at Birth
- 06/09/2007 - Missouri to Add CF to NBS
- 05/31/2007 - Research Findings on Urea Cycle Disorders
- 05/09/2007 - Mrs. Oklahoma Promotes NBS
- 04/20/2007 - New Hampshire in Bottom 5 States for NBS
- 03/20/2007 - New Therapies Improves Lives of Those with CF
- 02/23/2007 - Emergency Preparedness for NBS & Genetic Services Topic of Meeting
- 05/12/2005 American Academy of Pediatrics Endorses ACMG Recommendation to Screen for 29 Diseases And Reporting of 25 More
- 03/08/2005 - ACMG Report: Executive Summary
- 03/08/2005 - ACMG Report: Toward a Uniform Screening Panel and System
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