Alex's Happy Story - Still smiling...
This is a personal story update shared by a family whose child has Medium Chain Acyl-CoA Dehydrogenase Deficiency (MCADD).

Alex has now completed the first grade.   He has been hospitalized four times, all between the ages of 2 ½ and 5.   All hospital stays were less than 24 hours.   Alex plays soccer, loves trains, drawing, camping, and playing tag, and is generally as active as any kid his age.   Alex likes himself, and we are very proud of him.   At his age, he understands that if he vomits, it’s very important that his mom or dad be called immediately because he can get very sick very fast.   He also knows that eating sugar before bedtime “helps him not throw up”.

Sincerely,
Alex's Mother
Written July 2006 by Alex's Mother
Alex was born October 1, 1998

HOME |  ABOUT US |  PRESS RELEASES |  DONATE NOW |  VOLUNTEER NOW

Contact Save Babies Through Screening for questions about the content of this site or
the Webmaster for questions about technical issues related to this site.
Terms of use for this site.