© 2008 Save Babies Through Screening Foundation. All rights reserved.
The Save Babies Through Screening Foundation is a not-for-profit organization recognized as tax-exempt under Internal Revenue Code section 501(c)(3).
Our mission is to improve the lives of children by working to prevent death and disabilities resulting from disorders detectable through newborn screening tests.
Save Babies Through Screening Foundation, Inc.
P. O. Box 42197 • Cincinnati, Oh 45242
Toll Free: 1-888-454-3383
Family Stories
Meet the Children behind the statistics.
With all the statistics, politics and government budgets, it is sometimes easy to overlook what screening is all about - saving lives. The lives affected by these conditions are much more than just another number on a public health agency report.

Save Babies Through Screening feels it is an honor and a privilege to present these stories to you. Thank you to all the families who have shared their stories with us, and with the world.
If you have lost a child for unknown reasons please download our pamphlet:
Getting Answers About Your Baby's Death
Written by Kileen Hall



Submit your story to be shared in this segment.
Amino Acid Disorders
Fatty Acid Oxydation Disorders
Organic Acidemias
Additional Disorders & Disorders Detected By Technologies Other Than MS/MS
Argininosuccinic Aciduria (ASA)

Jonathan
Margaret

Homocystinuria (HCU)

Ben

Non-Ketotic Hyperglycinemia (NKH)

Ellie Kate

Phenylketonuria (PKU)

Margaret Doll
Carnitine Palmitoyltransferase Type II Deficiency (CPT II)

Kristina
Unclassified Fatty Acid Oxydation Disorder (U-FAOD)

Katie
Glutaric Acidemia Type II (GA-II)

Caden
Carsen
Long-Chain Hydroxyacyl-CoA Dehydrogenase Deficiency (LCHAD)

Nora

Medium Chain Acyl-CoA Dehydrogenase Deficiency (MCADD)

Alex
Alexis
Ben
Blayze
Brickman
Gracie
Isaac
Kevin
Lilly
Madison
Michelle
Thomas

Trifunctional Protein Deficiency (TFP)

Caleb
James & Samuel
Noah
Sean

Very-Long-Chain Acyl-CoA Dehydrogenase Deficiency (VLCAD)

Brett
Cristal
Storm & Tiger
3-Methylcrotonyl-CoA Carboxylase Deficiency (3MCC)

Damian
Sarah
Serina
Seth

3-Methylglutaconic Aciduria

Keagan
Beta-Ketothiolase Deficiency (BKT)

Olivia

Glutaric Acidemia Type I (GA-I)

Alli
Josias
Michael
Nikki

Isovaleric Acidemia (IVA)

Danny
Emil
Justice
Stephen

Methylmalonic Aciduria (MMA)

John Jr

Propionic Acidemia (PA)

Jordan
Tallina
Biotinidase Deficiency (BD)

William

Congenital Adrenal Hyperplasia (CAH)

Aidan

Galactosemia (GALT)

Dean
Derek
Kendall
Mandalyn Grace
Tyler

Sickle Cell Disease (SCD)

Malik & D'Anya