Category Archives: New Test Additions

DACHDNC Meeting – Day 1 – September 19, 2013

By Laura Larks




Discretionary Advisory Committee for Heritable Diseases in Newborns and Children September 2013 Meeting I’m a board member for the Save Babies Through Screening Foundation. We all serve the group in many ways, and one of my favorite things to do … Continue reading




CCHD Screening Signed Into Law in Oklahoma

By Kristine Brite McCormick




Save Babies Through Screening Foundation applauds Governor Mary Fallin and the Oklahoma General Assembly for making critical congenital heart defect screening law in Oklahoma. Governor Fallin signed the legislation, introduced by Representative Dan Kirby, this week. Parents in Oklahoma worked … Continue reading




Progress Update for CCHD Screening Legislation

By Kristine Brite McCormick




2013 has been a year of progress for CCHD screening legislation. The passage of CCHD legislation will help save the lives of babies who have congenital heart defects detectable through pulse oximetry screening. In 2013, 5 states have signed CCHD … Continue reading




Newborn Screening: A Professional Perspective

By Laura Larks




We often focus on parent voices, current events and important issues on our blog.  It is not often we get the opportunity to hear from a professional working in newborn screening.  Our wonderful medical advisor, Michele Hall, R.N., has taken … Continue reading




CHD Dad fighting for Pulse Ox Screening in Texas

By Laura Larks




I had been meaning to write letters to my local state senator and representative asking them to sponsor or support a bill requiring pulse oximetry screening in Texas for over a year, but I finally got motivated enough to write … Continue reading




February 7 to 14 is Congenital Heart Defect Awareness Week.

By Kristine Brite McCormick




February 7 to 14 is Congenital Heart Defect Awareness Week. Nearly one in 100 babies are born with a congenital heart defect, and less than half are diagnosed before birth. That’s where newborn screening comes into the picture. In 2011, … Continue reading




Updates from Washington – Day 2

By admin




Thanks for following our posts about this quarter’s meeting of the Secretary’s Advisory Committee for Heritable Diseases in Newborns and Children! I am pleased to send more updates from this second day of meetings. Update on State Implementation of Screening … Continue reading




Updates from Washington – Day 1

By admin




I am a board member for the Save Babies Through Screening Foundation as well as a parent of a child that had MCADD. My son Noah lived for only a few days in 2009 before he passed away, a day … Continue reading




An Act Requiring Newborn Pulse Oximetry Screening For Congenital Heart Defects

By Laura Larks




AN ACT REQUIRING NEWBORN PULSE OXIMETRY SCREENING FOR CONGENITAL HEART DEFECTS Often viewed as a problem of adults, cardiovascular disease also exacts a terrible toll on the young. Congenital heart defects, are the No. 1 birth defect in the U.S. … Continue reading




Organizations Partner to Advocate for Addition of CCHD to Newborn Screenings in Nevada

By Laura Larks




In Nevada, several organizations, including Save Babies Through Screening Foundation, are partnering to pass a bill that would require hospitals to screen all newborns for CCHD using pulse oximetry.  The 77th Nevada legislative session begins on February 4th and runs until … Continue reading