Category Archives: Family Stories

Newborn Screening Awareness Month Advocate Toolkit

By admin




We have updated our advocacy toolkit for you to use in your local and regional efforts to raise awareness! In the toolkit, you will find resources for spreading the word about newborn screening via social media, a sample letter to … Continue reading




Register Today for the First Annual SBTS Virtual 5k!

By admin




To celebrate and raise awareness for Newborn Screening Awareness Month, we are hosting a virtual run/walk!Participation is simple: Register, use the summer months to get yourself ready, and then in September, pick a place and time and run or walk … Continue reading




Join us for the 1st Annual SBTS Virtual 5k Walk/Run!

By Laura Larks




To celebrate and raise awareness for Newborn Screening Awareness Month, we are hosting a virtual run/walk! Participation is simple: Register, use the summer months to get yourself ready, and then in September, pick a place and time and run or … Continue reading




The 2nd Annual Paddle for Kids Event is here!

By admin




“Paddle For Kids” is not only a super fun competitive race, it’s also a super fun day out for all those involved! With food, music, hula-hoop and balance competitions, this paddle festival truly has something fun for everyone and last … Continue reading




The Clock is Ticking….

By Laura Larks




Years ago when the newborn screening system began, it all came into being because of time. Newborns needed to be screened for a baseline panel of illnesses, because waiting for the sick ones to become symptomatic before diagnosing them could … Continue reading




SBTS welcomes Ruth Caruthers to its Board of Directors

By Laura Larks




Save Babies Through Screening (SBTS) is pleased to announce that Ruth Caruthers has been elected to its board of directors. Ruth began her advocacy work after her three month old son passed away from heart defects in 2011. Since his … Continue reading




Michelle Leeker Advocates for Newborn Screening

By Laura Larks




Michelle Leeker is the mother of Trevor Leeker (Krabbe Disease), Kansas Newborn Screening Advisory Council member, and Baby’s First Test 2013 Consumer Task Force Member.  In an effort to raise newborn screening awareness, she recently gave a presentation to her … Continue reading




SBTS Board Member Kelly Jellin Gives Speech at Stanford for the Association of Auxiliaries for Children

By Kelly




Lucas and I recently gave a speech at Stanford for the Association of Auxiliaries for Children.  The association raised about $4,800,000 for Lucile Packard Children’s Hospital Stanford.  They donate blankets, quilts, distribute food, read to children, and volunteer many hours … Continue reading




SBTS Advisor Ruth Caruthers Advocates for Babies

By Laura Larks




If you would have asked me three years ago if I thought I would be traveling to advocate newborn screening, I would have laughed. “Nahhhh”, I would have said, “I’m not important enough to do that.”  Yet here I am. … Continue reading




Save Babies Through Screening Foundation Welcomes Ruth Caruthers as an Advisor to its Board of Directors

By Laura Larks




Ruth Caruthers became an advocate for CHD and pulse ox screening after the death of her three month old son, Corbin, due to complications from heart defects. Less then a year after his passing, Ruth helped pass Corbin’s Bill, requiring … Continue reading