Category Archives: Family Health

Newborn Screening Awareness Month Advocate Toolkit

By admin




We have updated our advocacy toolkit for you to use in your local and regional efforts to raise awareness! In the toolkit, you will find resources for spreading the word about newborn screening via social media, a sample letter to … Continue reading




Newborn Screening Awareness Month 2015!

By admin




  Newborn Screening Awareness Month is here and we have some great things planned for the month! Every day you’ll find new facts, family stories and information to share on social media. We have an entire photo album of profile … Continue reading




Register Today for the First Annual SBTS Virtual 5k!

By admin




To celebrate and raise awareness for Newborn Screening Awareness Month, we are hosting a virtual run/walk!Participation is simple: Register, use the summer months to get yourself ready, and then in September, pick a place and time and run or walk … Continue reading




The Clock is Ticking….

By Laura Larks




Years ago when the newborn screening system began, it all came into being because of time. Newborns needed to be screened for a baseline panel of illnesses, because waiting for the sick ones to become symptomatic before diagnosing them could … Continue reading




SBTS: Packets for Parents Program

By admin




Save Babies Through Screening Foundation’s Packets for Parents program provides free supplemental screening packets to families in need.  This year, the importance of this resource for families was highlighted by the Milwaukee Journal Sentinel’s Series ‘Deadly Delays‘ which brought to … Continue reading




Canadians Celebrate Newborn Screening Awareness Month

By Laura Larks




September is a busy month for many families; it is back-to-school season after all. According to data from Statistics Canada, it is also one of the biggest months for births in the country! This makes September the perfect time for … Continue reading




Paddle For Kids: most anticipated paddle race event of the year

By Laura Larks




Event Date: May 24, 2014 Races start at 9a.m. City: Safety Harbor Event website: www.paddleforkids.com Location: Safety Harbor Waterfront Park, 110 Veterans Memorial Ln, Safety Harbor, FL 34695 Paddle For Kids is a waterfront festival featuring paddle race competitions for … Continue reading




Michelle Leeker Advocates for Newborn Screening

By Laura Larks




Michelle Leeker is the mother of Trevor Leeker (Krabbe Disease), Kansas Newborn Screening Advisory Council member, and Baby’s First Test 2013 Consumer Task Force Member.  In an effort to raise newborn screening awareness, she recently gave a presentation to her … Continue reading




MNAAP Lobby Day

By Laura Larks




Update from Minnesota! On the afternoon of March 26th, 2014, over 115 pediatricians, residents and medical students convened at the Minnesota Capital to speak with legislators about newborn screening and other issues important to child health.  This lobby day was organized by … Continue reading




Minnesota Newborn Screening Restoration Bill Passes Senate Judiciary Committee Vote

By Laura Larks




We are happy to share that the Minnesota Newborn Screening restoration bill passed the Minnesota State Senate Judiciary Committee last night! Many thanks to Senator John Marty, Stacy Nugent, Dr. Sue Berry and Korissa Olsen for their testimony in front … Continue reading