NBS Unity Quilt Panel makes a trip to Washington DC
The Medium Chain Acyl-CoA Dehydrogenase
Deficiency (MCAD) quilt panel honoring, Ben Haygood, was on display during the
National Society of Genetic Counselor’s 20th Annual Education
Conference held in Washington, DC from November 4-7, 2001.
Nearly 1,000 genetic counselors were in attendance to learn about recent
developments in medical genetics, anticipated advances in comprehensive genetic
testing, and new complexities in counseling issues.
The quilt and Ben’s story made a lasting impression and were an ideal prelude to the short course about the counseling and management of metabolic disorders which followed the regular program. The purpose of the short course was to provide a comprehensive review of a variety of inborn errors of metabolism. Emphasis was placed on understanding the status of current biochemical and molecular testing options, treatment and medical management, and counseling strategies aimed at assisting families in coping with the medical implications and psychological impact of metabolic disease.
Genetic Counselors left the conference equipped with the scientific knowledge and personal perspective needed to integrate this new information into their clinical practice.
Many thanks to New Screen who organized and coordinated the display, and to the Haygood family who created and donated the quilt panel.
Please Note: New Screen no longer offers newborn screening. Please visit our labs page for information on participating labs.
HOME | ABOUT US | PRESS RELEASES | DONATE NOW | VOLUNTEER NOW
Contact
Save Babies Through Screening
for questions about the content of this site or
the Webmaster
for questions about technical issues related to this site.
Terms of use
for this site.