A panel from the Newborn Screening Unity Quilt was displayed at the American Academy of Pediatrics conference in San Francisco, October 20-22, 2001. The panel, featuring Ben Haygood’s story—a little boy who was lost to MCAD, was displayed in the NewScreen: Expanded Newborn Screening booth to promote awareness about the importance of comprehensive newborn screening. The quilt panel was successful in giving a face to the so-called rare disorders that are not included in many state-mandated screening programs. “For many doctors, reading Ben’s story gave them a new perspective about newborn screening,” says Neeta Patel, a representative from NewScreen who attended the show. “Doctors were touched by his story.”

The conference attracted nearly 6,000 attendees and also featured an expanded newborn screening talk by Dr. Ed McCabe, professor and executive chair at the UCLA Department of Pediatrics. Dr. McCabe mentioned “Ben’s Bill,” Mississippi legislation spearheaded by Vince and Robin Haygood that requires patient education about comprehensive newborn screening.

NewScreen offers a simple screening for more than 50 metabolic disorders and is available to all babies born in the U.S., regardless of what state they are born in.

Please note that Newscreen is no longer offering NBS. Please see other labs for expanded screening Pediatrix or Baylor.

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