The Word of Mouth Challenge
Affected families are asked to share their personal story in a word of mouth campaign. The next time you see any of your friends, family, neighbors, co-workers or anyone else, tell them about the need for supplemental newborn screening and use of overnight services to transport their child’s NBS specimen. Then ask them to tell someone too!  This will ensure the message never ends.  Help save babies by spreading three little letters – NBS!!!

Almost every family whose child dies or is damaged from a disorder detectable through newborn screening, and then learns that their child's suffering could have been prevented, says, "If only I had known."  Help everyone you meet “know” about newborn screening and what it could mean to their child’s life. Make sure everyone you meet knows what you wished you would have known.

What to say...

1. WHAT?
   Newborn screening is a routine test done on every baby born in the United States, however this routine testing may not be enough. As many physicians don’t know about the availability of this screening, parents will have to obtain full screening for all disorders them selves.  They will need to obtain screening kits and take them to the doctor to have their child screened.
   
   Most newborn screening tests are sent to the newborn screening laboratory by regular mail.  This causes delays in the laboratory receiving the test.  Parents should see that their child’s test is sent by same-day or overnight delivery services.
   
   Older children and adults can have these disorders and have been fortunate enough not to have went into medical crisis  . . . YET.  They too can get screening through these supplemental laboratories
   
2. WHY?
   Even though these conditions may not sound familiar, they occur fairly frequently. Without early treatment, these conditions can cause irreversible mental retardation, physical disabilities and even death. BUT, with early detection enabled by comprehensive screening, most affected children babies will live normal, healthy lives.  Screening allows PREVENTION and we all know that “an ounce of prevention is worth a pound of cure.
   
3. HOW?
   You can get the full screening by contacting a laboratory that offers supplemental screening.  A listing of these laboratories can be found at here or by calling 1-888-4-LIFE-83.

Other ways to Share Your Story...

• Use the media!!!
   Run an article in your church newsletter, homeowner’s association or apartment complex newsletter, women’s or men’s club newsletters, local newspapers and magazines, school newspaper, etc.  Here are a few articles that you may use:
• 100 words or less
• 200 words or less
• 500 words or less
  
• Make it fun!!!
  Challenge your friends, family, and co-workers to see who can tell the most people about NBS in a week. Save Babies Through Screening will be happy to provide everyone that participates with “I Helped Save Babies” recognition certificates.
  
• Use the net!!!!!
  Do you have a personal webpage or a webpage for your business?  If so have your webmaster add a link from your site to ours for visitors to learn more about newborn screening. Simply copy the following HTML code and paste into your webpage:

  <p align="center"><a href="http://www.savebabies.org"><img border="0" src="http://www.savebabies.org/images/pin-small.gif" alt="NBS_Pin.gif (120043 bytes)" width="69" height="72" align="left"></a><a href="http://www.savebabies.org/images/pin.jpg"><br>

  </a>Save Babies Through Screening Foundation<br>

  <b><i>LEARN MORE NOW!</i></b>

  It will look like this on your site and link to this page:

  Save Babies Through Screening Foundation LEARN MORE NOW!

HOME |  ABOUT US |  PRESS RELEASES |  DONATE NOW |  VOLUNTEER NOW

Contact Save Babies Through Screening for questions about the content of this site or
the Webmaster for questions about technical issues related to this site.
Terms of use for this site.