Save Babies Through Screening Foundation promotes its mission by working to:
Improve awareness of disorders detectable through newborn screening.
Facilitate communication among screening programs, support groups, and families
Assist parents in understanding their state's newborn screening requirements.
Support implementation of newborn screening guidelines and regulations.
Encourage prompt clinical identification of affected newborns.
Enhance resources for newborn screening including testing, parent and professional education, short-term follow-up care programs, long-term follow-up programs for treatment/management and related services, and related research and development.
Promote national consistency in policies and service delivery among state screening programs.
Learn more about newborn screening, which disorders are screened for in your state, and other frequently asked questions. More
Learn what it means when your baby initially screens positive for a disorder. What questions should you ask your doctor? What resources are available? More
Find support groups for and learn more about your baby’s disorder, learn about additional resources available to you and your family. More
Access Save Babies Through Screening Foundation's extensive links to resources available to support you, learn about screenable disorders. More
Watch to learn why newborn screening is vital for your family and the country. Hear compelling stories of families who have been impacted by newborn screening. More